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The Secret of “The Hot Pink Tape”

This post was originally written for Child Guide Magazine.  Check out the many resources Child Guide offers as well as this article and others HERE.

If you are a runner, or have watched a race or even perhaps a professional sporting event lately, you may find yourself asking, “What is that bright colored tape people are wearing? And why is it cut in crazy patterns?” That trendy tape, often seen in bright pink or blue or sometimes black, is called Kinesiotape and it isn’t exactly new, even though it may have gained popularity in recent years in the US. But did you know that Kinesiotape is not just for athletes? This versatile tape is actually a very effective tool for children with motor challenges as well!

 

Kinesiotape is a progression of Kinesio Tex, which was invented by Dr. Kenzo Kase in Japan in the 1970’s. Dr. Kase was searching for an alternative tape to traditional athletic tape. He noticed that traditional tape often restricted movement, did nothing to aid healing, and could potentially cause additional injuries. Out of his hard work, Kinesiotape was born. What makes it different? Kinesiotape is elastic, latex free, cotton based tape that can stretch up to 30-40% of its original size. These properties allow it to be more versatile than traditional tape. In additional to allowing full range of motion and being very comfortable on the skin, the elasticity of the tape allows it to perform many functions. Kinesiotape is meant to be placed very strategically depending on the reason why someone is wearing it. Depending on placement it can increase healing, decrease inflammation and swelling, and support weak muscle by encouraging activation, or increase function lost by spastic muscle by encouraging a decrease in muscle tone. In addition posture can be improved with use.

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Sounds pretty incredible, right? Here’s how it works. Our muscles are each individually covered in a think filmy layer called fascia. Between the skin and this fascia are layers of connective tissue. When Kinesiotape is applied strategically to the skin, it tugs on the skin, which pulls on the connective tissue, which pulls on the fascia, which tugs on the muscle. The result is either an increased “fascial envelope,” allowing for 1) increased removal of toxins (lactic acid and waste) and increased space to allow fresh blood to restore tissue or aid in healing or 2) Encouragement of activation of a specific muscle for a specific purpose., improving posture or strength through increased use.   When used this way, the tape is like a constant tapping on weak muscles saying, “Use Me!”

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This can potentially best be illustrated by looking at something concrete like a bruise.

In the images below, Kinesiotape has been used to increase the space between the fascia and the skin and allow quicker healing in the places where the tape was placed.

How is this used with children or anyone with motor challenges? In many ways! Children with atypical muscle tone (either hypotonia (low tone), hypertonia (high tone) or any sort of weakness may benefit from Kinesotape. When the tape is applied strategically over the muscles that need assistance or strengthening, the result is a slight tug that encourages the child to use their body in a specific way. When used this way, Kinesiotape can be used as a bridge to encourage strengthening or function through active participation. The child wears the tape, the tape encourages the child to move their body in a way that strengthens, stretches, or improves function, and eventually the child may get strong or functional enough to not need the tape. An example would be using the tape on the abdominal or back muscles in a child with Downs Syndrome who has trouble sitting alone or on the hand of a child with Cerebral Palsy who has a hard time opening the hand to grab for things.

Owen Ruffner is a 2 year-old child has benefitted from Kinesiotape in large ways. Owen has Mitocondrial Disease and as a result has weakness and low muscle tone, which challenge him when moving and attempting to control his body. Owen is learning to walk with a gait trainer and without tape, tends to drift to his left weaker side. When Kinesiotape is placed on the left leg, encouraging full activation of his muscles, he able to walk in a straight path. These results were immediately noticed after 1 application by his Physical Therapist. His mother Kasey McDaniel has been thrilled with the progress. She shares, “Kinesiotape has helped Owen by giving him a chance to use his muscles on his weaker side. I have noticed a huge difference with daily function and with helping him as he learns to walk.”

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The possibilities are quite endless with Kinesiotape as it is relatively low cost, is easily tolerated on the skin, is waterproof, and usually lasts 3-5 days per application. It is very important that anyone using the tape is initially taped by someone with strong knowledge of anatomy, such as a licensed physical therapist, and by someone who has had training on the Kinesiotape method.  Once a few applications are applied, tweaked as needed, and monitored, a successful method can be taught to a willing parent, who could continue the taping at home, with the help of a physical therapist.
It is true that Lance Armstrong was one of the first to expose Kinesiotape to the United States, swearing by the pink tape specifically for his knee injury, but your child may benefit as well. If you haven’t tried it yet, the risks and cost are low, but the benefit is often quite high. Ask your pediatric PT about Kinesiotape at your next visit.

 

For more information about Kinesiotape and the Kinesiotaping method, visit: http://www.kinesiotaping.com/ and http://www.kinesiologytapeinfo.com/pediatric-kinesiology-taping/

 

“The Look” And What It Silently Says to Me From A Sibling Of A Child With Special Needs

Last week I got the opportunity to speak at career day at my daughter’s school.  I drag my big therapy ball, some thera-band and thera-putty, my anatomy coloring book, a baby doll, and other interesting goodies that I play with every day into the school every time I am asked to do this.  The “regular grown ups” (aka lawyers, mortgage brokers etc.) laugh kindly.

 Last week, I had 20 minutes to share what I felt was most important about the profession I love. And then I did it again 3 more times. 100 4th graders and me. I gab on and on about how Physical Therapy is repetitively listed as one of the “happiest” professions, how great the job outlook is in coming years, and what I love about my job. I share that interested students need to like sciences, can’t be repulsed by touching people, and need to enjoy social interaction with many kinds of people.  I am a total nerd, but I get misty eyed sharing about how I love the teaching part of my job and what a blessing it is to motivate parents who get such satisfaction and joy when they get to be the ones who teach their child to roll, crawl, or walk!

I’ve done this for years for elementary, middle, and high schoolers. Without a doubt, when I ask for questions at the end, I get the same ones every single time – no matter the age.

“Did you ever work with an NFL player, NBA player…Professional Wrestler?”

“What’s the grossest thing you have ever done?”

“How much do you get paid?”

“You dissected a real human in school? Ew. Were they alive or dead? Was there blood? Did you cry? Ew.”

As consistent as these questions are, I am always ready for them. And there’s another one that happens every time as well. Usually when we are almost out of time, a child will somewhat sheepishly raise a hand and when I call on them will ask…

“Have you ever worked with someone with Downs Syndrome?”

 

or

 

“Have you ever worked with someone with Cerebral Palsy?”

 

or

 

“Autism?”

 

No other comments. But none are needed. I get the look and I know. This is the sibling of a child with special needs. No words are needed because the look is enough.

The look says, “I know you get it.”

The look says, “Someone like you has been to my house every week and knows us.”

And, “You know how hard my family works for small things that people take for granted.”

And, “You know how sad it is for us when people make hurtful comments.”

And, “You know that I am often expected to be more patient that most kids my age, and that that isn’t easy, and sometimes I’m resentful, or wish for more attention, and jealous. And you know that I feel bad about that but I still can’t help it.  And you know that despite these sometimes “yucky” feelings, nothing makes me feel more proud than when my sibling overcomes and obstacle or learns something new…because they don’t do it alone…my whole family does.”

Career day is a joy. It’s a day that recharges me with excitement about my job and my calling in this world. But, the sibling “look” gets me every time. 

Sometimes I wonder if those kids can silently read my “look” back to them. If they can, I hope they read,

“You are brave. And strong. And important. Not just because of the kind of sibling you are, but because of who YOU are. All alone. As YOU.”

And I hope they hear, “What you are learning from your sibling experience is compassion, and empathy, and a patience, and an awareness, and gratitude greater than average people will ever even know. And it is a gift. And it will make you do great things in your life.”

And I hope they know, “Your parents love you for you. Not because of what you do to help but for who are you are. Are for the special gifts you yourself have.”

And finally, I hope my look back says, “I get it.” And even though I don’t know you, “I’m proud.”

I’ve spent a lot of time thinking about the kid that asked that question last week and the kids who have asked that same question in the years before.  April is a month dedicated to Autism Awareness, Child Abuse Prevention, Mesothelioma, Children’s Footwear Awareness, National Minority Health Month, and Genocide Awareness & Prevention among others.  All are so important.

But I’m here to say, let’s let every month be awareness of siblings with special needs month….awareness of their own special needs. 

How can you celebrate?

Do you know a sibling of a child with special medical or health care needs?

       Take them out for a special day celebrating just them..doing something they love and often can’t do.

       Better yet, volunteer to watch their sibling so their own parent can do the same.

       Make a donation to the many camps that offer attention and love to these super siblings so that a child can attend. Financial costs are often a struggle for families. Sharing your resources to help a sibling attend camp, or play a sport would be a gift!

       Simply be aware of the challenges with families you know or don’t know. Offer help if you feel comfortable. Offer a smile. A “we are all in this together” wink. All can go a long way.

       Teach your child compassion and friendship by modeling it. Siblings of children with special needs have their own special needs – quality friendship is one!

 

Do you have a child with special medical or developmental needs? How do you feel their siblings are best supported? What are their needs? Join our conversation!

 

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It’s time for AUTISM ACCEPTANCE

 

Autism is everywhere.  10+ years ago I remember someone saying to me everyone has been touched by cancer in some way.  Now I feel the same can be said of autism.  Most, if not all of us, either know someone with autism or are a parent of a child with autism or have autism him/herself.  The numbers are climbing, awareness is increasing, research is advancing and acceptance is nearing.

Every year the month of April is deemed Autism Awareness Month (learn how we celebrate here).  In celebration of this blogs are buzzing with personal stories to help us understand what it is like to live with autism and national organizations are highlighting facts in an effort to help us all better understand this complicated diagnosis.  Autism (or ASD, Autism Spectrum Disorder) is defined as a group of complex brain disorders including varying degrees of difficulty with social interactions, nonverbal and verbal communication and repetitive behaviors.  Below are some staggering, ever changing statistics to highlight the impact of autism and its reach:

 

1 in 88 children are diagnosed with autism

 

1 in 5 of those children diagnosed will have a sibling who is also diagnosed with autism

 

1 in 50 school aged children are diagnosed

 

½ of those school aged children diagnosed have sensory integration issues (want to learn more about sensory integration disorder? click here)

 

4 to 5 times as many boys as girls are diagnosed with autism

 

40% of those diagnosed with autism have average to above average intellectual abilities

 

About 25% of those with autism are nonverbal but can learn to communicate in other ways

 

Autism can accurately be diagnosed as early at 2 years of age however most are not diagnosed until after 4 years of age

 

The most obvious signs of Autism emerge between 2 and 3 years of age

 

Research is proving a combination of autism risk genes and environmental factors that influence early brain development are the cause of autism.

 

Research is suggesting that a woman can reduce her chances of having a child with autism by taking folic acid or eating a diet rich in folic acid before and after conception

 

Below are listed the “red flags” to look for to know if your child may be at risk for an autism diagnosis taken from the Autism Speaks website (www.autismspeaks.org):

  • No big smiles or other warm, joyful expressions by six months or thereafter
  • No back-and-forth sharing of sounds, smiles or other facial expressions by 9 months
  • No babbling by 12 months
  • No back-and-forth gestures such as pointing, showing, reaching or waving by 12 months
  • No words by 16 months
  • No meaningful, two-word phrases (not including imitating or repeating) by 24 months
  • Any loss of speech, babbling or social skills at any age

 

The Autism Speaks website also states that one of the best things parents and caregivers can do is to learn the early signs of autism and become familiar with the typical developmental milestones that your child should be reaching (1-2-3 Just Play With Me can help you get started!).  With this knowledge you will be better equipped to recognize warnings signs and advocate for your child by seeking help from a professional as early as possible.

Autism speaks…it’s time for us all to start listening, learning and accepting!

If you want to learn more or share with others what you know about autism, join us Tuesday, April 9 at 8pm as we tweet chat with Treatment Diaries all about autism. #treatdiarieschat