If you haven’t heard our new podcast titled One of the Lucky Few you can find it HERE on iTunes and HERE on Podbean.

Here’s what this episode is all about (grab your tissues!):

In one of our most personal and helpful conversations yet, we are joined by Megan Dodd. Megan, a seasoned educator, reading specialist, and administrator took on a new role as Mom when her amazing son Alex entered the world. Megan takes us on an intimate, honest, and real conversation about parenting a child who happens to have Down Syndrome. She shares her story of learning of Alex’s diagnosis, struggles of finding early connections to other parents with similar experiences, tales of medical diagnoses, hospitalizations, procedures, and therapy along with triumphs and many victories for her bright and beautiful son. In her unique position as an administrator and a parent, Megan shares advice on advocating for inclusion and navigating the public school system. Through Alex’s experience with a co-diagnoses of leukemia, Megan has learned and shares valuable lessons that can help every listener. She has turned her pain into power by co-founding the Down Syndrome Cancer Coalition and is an advocate and administrator of the Down Syndrome Diagnosis Network (The Rockin’ Moms). In our part of the world and for many across the globe, Megan has become a “go-to mom” for those first learning about their child’s diagnosis with Down Syndrome and/or Leukemia. Parents and family members of children with and without these diagnoses, therapists, and educators can all learn something to make the world a better and more inclusive place to be from listening to Megan share her story.

Megan shared many wonderful and helpful resources with us. You can find them here!

Support & Advocacy:

Down Syndrome and Cancer Coalition

Down Syndrome Diagnosis Network 

Global Down Syndrome Foundation

Research on Down Syndrome and Cancer 

Books:

A Good and Perfect Gift: Faith, Expectations, and a Little Girl Named Penny 

Down Syndrome Parenting 101: Must Have Advice for Making Your Life Easier 

Whole Child Reading: A Quick Start Guide to Teaching Students with Down Syndrome and Other Developmental Delays 

The Parent’s Guide to Down Syndrome: Advice, Information, Inspiration, and Support for Raising Your Child from Diagnosis through Adulthood 

Wrightslaw: From Emotions to Advocacy: The Special Education Survival Guide 

WrightsLaw: All about IEPs

Added by us!

Gross Motor Skills for Children with Down Syndrome (A Guide for Parents and Professionals) 

Early Communication Skills for Children with Down Syndrome (A Guide for Parents and Professionals)

Fine Motor Skills for Children with Down Syndrome (A Guide for Parents and Professionals)

1-2-3 Just Play With Me (can be adapted for any child to focus on the STAGE not the AGE and to notice, track, and realize the many small steps between big milestones. Be empowered to encourage development through practical play suggestions!)

 

 

 

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